Eastern AHSN supports the delivery of innovative projects to deliver patient impact in the region. This includes working with local organisations to enable the adoption and spread of national projects with a proven evidence base, as well as the development of projects to develop and pilot carefully selected innovations in the local healthcare system, with a view to scaling the most effective solutions. The Project Support Officer role will be the support function for several projects and will provide project support expertise to the Health Informatics Team, helping to ensure successful project delivery with measurable outcomes. The post holder will work as part of a small team responsible for convening partners and stakeholders to deliver projects and programmes of work undertaken by the Health Informatics Team, which include our ‘flagship’ programme Gut Reaction, the Health Data Research Hub for Inflammatory Bowel Disease, CYNAPSE and number of internal and external technical projects.
About the Health Data Research Hub for Inflammatory Bowel Disease (IBD)
Following the success of a proof concept project in Rare Diseases, we were then awarded £5M funding from HDR UK and the Industrial Strategy Challenge Fund (ISCF) to develop a Heath Data Research (HDR) Hub for IBD. The hub was established in October 2019 as a 3-year programme to integrate genomic data with structured phenotypic data and longitudinal healthcare data from a large cohort of patients recruited to the NIHR BioResource with Crohn’s disease and ulcerative colitis (collectively inflammatory bowel disease or IBD).
Working with a range of NHS, academic and industry partners, we are developing a world-class, multi-dimensional integrated data resource and a secure cloud research environment for research and innovation underpinned by a sustainable model based on open tools and data standards to then be scaled and replicated for other disease areas.
The aim of the CYNAPSE project is to modernise and future-proof the computational infrastructure for genomics and wider ‘omics’ data across the NIHR Cambridge Biomedical Research Centre (BRC). Eastern AHSN and Cambridge University Health Partners (CUHP) were jointly commissioned to scope delivery, potential costs and the procurement route to secure this infrastructure. Successful outputs from this excise included a Target Architecture, Target Operating Model, documented options for delivery and a specification to support procurement. We have now been commissioned for a further year to support the procurement and implementation of the infrastructure, and this Project Manager role will be expected to take ownership of some elements of this project.